Mary Powell's Inspiring Approach to Managing Heart Failure While Waiting for a Transplant

Mary Powell eyes the tomatoes at the Hickory Farmers Market and makes a beeline to the vendor, hoping to buy plenty to store through the winter for use in a wide variety of low-sodium, heart healthy recipes. In talking with this glowing 55 year old mother from Conover, it’s difficult to process the magnitude of her illness. Mary’s heart is failing and she is doing everything she can to buy time while waiting on a transplant.

“I don’t know if I’m supposed to feel happy or sad,” says Mary contemplating what it will be like to hear that a heart is available. “I know that will mean that another person lost their life.” She explains that it has been a long six-year journey from the time she first learned that she has chronic heart failure. “I had my first major heart attack 6 years ago at the age of 49. Surgeons performed a heart catheterization then, but two days later, I needed an emergency triple bypass. Then, I was informed that, because of the degree of my heart failure, I am a candidate for a heart transplant.”

With heart failure, a weakened heart cannot pump sufficiently to meet the body’s need for blood and oxygen. As a result, Mary gets extremely fatigued and short of breath, making it hard to get around. A former machine operator, Mary is now unable to work and considered disabled. “If you ask a doctor ‘what is heart failure’, they tell you it’s a series of deteriorating symptoms related to the failing heart,” said Mary. “If you ask me, I say some days I am so sick, sick to the point that I can hardly get up, get going or start my day. Some days are fairly ok – but getting shortness of breath is extremely anxiety producing.”

Mary’s name was added to the heart transplant registry in April 2016. Doctors consider many factors in evaluating patients for a heart transplant. This includes analysis of Mary’s liver and kidney function to determine whether or how much poor blood flow is hampering the vital functions of these organs. Patients are ranked, with highest priority given to the sickest. Mary said that her doctor told her that the call for transplant could come at any time – as early as a few weeks after being put on the list, or it could be several years from now.

“Information is power,” says Mary. “So, I’ve made it my mission to learn everything I can about heart failure and prepare for a transplant.” Meanwhile, she is also doing everything she can to stay well and avoid numerous trips to the emergency department. Central to this mission, Mary started participating in the CVMC Heart Failure Support Group and going to Catawba Valley Cardiology’s Heart Failure Clinic, an alternative to repeated emergency room visits and a more proactive management option for her heart failure symptoms.

Mary was one of the first heart patients to attend the aptly named support group – “Turning Failure Into Success”. At the August meeting she treated other participants to a bowl of her homemade low sodium turkey noodle soup while the group listened to a presentation about advance directives and palliative care. At these support group meetings, CVMC provides easy (and free) access to heart failure specialists, empowering participants with resources and information including medication and symptom management as well as recommended lifestyle changes.

“I started keeping a binder when I began the transplant evaluation process,” Mary says. “In this binder I keep details about my past hospitalizations and procedures; all of my medications; insurance claims; contact information for all of my providers (this includes doctors, nurse practitioners, social workers, dieticians, and psychologist among others); helpful details for my primary and major caregivers and even gift cards to give my caregivers in case they need any incidentals at nearby stores when I am hospitalized during the transplant.”

Mary is a testament to the growing needs of all heart failure patients. According to the National Heart, Lung and Blood Institute, an estimated 5 million Americans have congestive heart failure and the numbers are on the rise. This year, CVMC received Heart Failure Accreditation status from the Society of Cardiovascular Patient Care (SCPC), recognizing the hospital’s commitment to provide patients ways to help manage heart failure so that they can enjoy a better quality of life despite their disease. To learn more about the heart failure services and programs available and how CVMC can help you manage your condition please contact Catawba Valley Cardiology at 828.326.2354.

Although there is no cure for heart failure, many patients, like Mary, learn to live full lives even with the condition. CVMC’s dedicated heart failure clinic, the only one in the area, provides preventative care for patients experiencing heart failure symptoms. The clinic offers an alternative to an emergency room visit for patients coping with heart failure symptoms such as shortness of breath, swelling or fatigue.

Turning Failure Into Success, CVMC’s Heart Failure Support Group meets the first Tuesday of every three months (February/May/April/November), from 5:30pm to 6:30pm at the Health First Center located on Tate Blvd. next to Catawba Valley Imaging Center. Come and learn how to successfully manage lifestyle changes to promote better living with heart failure! This program is free! All of those living with heart failure, their family members and caregivers are welcome to attend! For more information, please contact Amber Hice RN, BSN, Heart Failure Coordinator, at 828.326.3997.

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